After surgery

Going home

In the first few days after surgery, you will gradually increase how much you are able to do and most people go home after seven days. Patients usually go home on their normal medication regime, and this will continue unchanged for at least the first year. Very occasionally, some people develop side effects from their medication after surgery, this will be treated on an individual basis, and medication will be changed if necessary before you leave hospital.

Remember to gradually increase how much you do both physically and mentally over the next few weeks. It is normal to have good and bad days. Some people have headaches, but these will reduce with time. The specialist epilepsy nurse is available for advice if you have any questions. 

Once they have left hospital, most people will be able to do everything for themselves, such as washing and dressing, but will find they get tired very easily. You will need to rely on friends and family for support, and gradually build up how much you can do. The surgical team will discuss with you your plans for recovery, but if you have specific concerns, such as living alone, or caring for small children please let us know.

If you work, when you return, it is suggested that you start part-time, and gradually build back up to your normal hours over several weeks. It is likely that after such a long break, returning to work will be tiring, so take things at your own pace. The epilepsy nurse will be happy to contact your employer if you, or they have any concerns.

Follow up after surgery

The epilepsy nurse will be available for advice after you leave hospital. An appointment will be made to come back as an outpatient to see the neurosurgeon around six to eight weeks after you leave hospital. Over the next six months, the neurologist, neuropsychologist and liaison psychiatrist will give you appointments for review. You will have a repeat MRI Scan and most patients will also have their vision checked. Wherever possible, several appointments will be arranged for the same day to limit the number of visits you need to make.

We will continue to review you at regular intervals over the next few years. 

Emotional reactions

Each person copes differently with having surgery. If the operation is successful, experience has shown it can take people a long time to get used to life without seizures. Remember, you have lived with your epilepsy and the difficulties that it brings and you and your family will need to go through a period of re-adjustment after the operation.

Emotional reactions are quite common. Some people can develop temporary depression after surgery, and we encourage you and your family to be aware of this. The depression will usually resolve by itself or can be helped with a short course of medication. Very occasionally it may require a hospital admission for treatment.

You may find that becoming more independent, and being faced with choices such as returning to work, learning to drive or starting a family can be stressful. Allow yourself time to recover at your own pace and try not to put pressure on yourself to make changes too soon. If you have any specific aims after surgery, discuss this with the epilepsy surgery team before your operation, who will be able to assist you in forming a plan to achieve your goal.

We encourage you to talk through how you are feeling with your friends and family. If you, or your family are finding things difficult, please let us know. We are here to help.