You might find the following websites useful:
Spires Cleft Centre
Information for parents of babies and children with cleft lip and palate in the Wessex region.
Antenatal Results and Choices
Support and information for parents throughout the antenatal screening and diagnosis process, and when a diagnosis of abnormality has been made in their unborn baby.
Down's Syndrome Association
Support and information for people with Down's syndrome and their families.
Little Hearts Matter
Support and information for people and families affected by single ventricle heart disease.
Contact a Family
UK charity for families with disabled children, offering information on specific conditions and rare disorders.