Useful haemophilia links
Here are some useful websites for patients and their families:
hclocator.org - (EUHANET) Enter your location to find your nearest five European Haemophilia Centres.
haemophilia.org.uk - The Haemophilia Society is the only national, independent and patient led organisation for people affected by bleeding disorders. They work in close partnership with the NHS to offer information, support and represent the interests of those affected.
nhs.co.uk - the NHS website is the UK’s biggest health website. It provides a comprehensive health information service that puts you in control of your healthcare.
ukhcdo.org - This page is dedicated to haemophilia patients and their families. It provides comprehensive and useful information on haemophilia, bleeding disorders and the National Haemophilia Database (NHD).
wfh.org - The World Federation of Hemophilia (WFH), an international not-for-profit organisation, was established in 1963. It is a global network of patient organisations in 118 countries and has official recognition from the World Health Organisation.
turn2us.org.uk - Turn2us are a charitable service which helps people access the money available to them – through welfare benefits, grants and other help.
cafamily.org.uk - Contact a family is a UK charity for families with disabled children. They offer information on specific conditions and rare disorders.
rainbowtrust.org.uk - The Rainbow Trust Children's Charity provides emotional and practical support to families who have a child with a life threatening or terminal illness.
factorfitness.co.uk - Factor Fitness offers information about sport and haemophilia.
medicalert.org.uk - MedicAlert is the only non-profit making, registered charity providing a life-saving identification system for individuals with hidden medical conditions and allergies.