Cystic fibrosis clinics
Clinics are held in our dedicated consulting rooms on C level, West Wing at Southampton General Hospital. They run in the afternoons on Monday, Tuesday, Wednesday and Friday. Appointments are available at 2pm and at 3.30pm. Please allow plenty of time for parking.
You can expect to be seen every time by one of the doctors in the team as well as by the CF specialist nurse, physiotherapist, and dietitian. Other members of the team may be available on request. If you know in advance that you need to see a particular member of the team or have particular requirements, please give us as much notice as possible.
We ask that you keep a record of your future appointments with us, and let us know with as much notice as possible if you are unable to attend - at least 72 hours notice for routine appointments, and at least a week for an annual review. If you don't give us this notice, it may deprive someone else the chance to get the help they need.
In addition to the members of the adult CF team, you may need to see other specialists for advice about managing your cystic fibrosis.
The following people provide outpatient services in the adult CF clinics:
We work closely with our ear, nose and throat (ENT) doctors Mr Phil Harries and Mr Rami Salib. They will see you in their own clinic as necessary, which usually takes place at the Royal South Hants Hospital.
Other outpatient services
Annual reviews are an important part of every patient’s care. They happen on Monday, Tuesday, Wednesday and Friday mornings, and can last up to five hours. You can expect to be seen by a representative of each part of the team. Tests routinely required include blood tests, a urine sample, lung function testing, and an exercise test. If possible, we prefer all patients to come fasted (we understand this may not be possible for some).
Annual reviews are booked by the admin team one to three months in advance. You will be contacted by a member of the team to book a convenient day.
Home IV service
We provide a home IV service so that patients can have antibiotics at home when this is appropriate. This includes some antibiotics being delivered, ready-made, to your home by an independent pharmacy company. In addition we have our own specialist nurses and physiotherapists who can conduct home visits. We'll be increasing this as part of the service throughout 2017.
For patients who are in Hampshire, it may be possible to arrange for a nurse from Healthcare at Home to visit you twice a day to administer your antibiotics and take blood tests for levels.
There are times when it will be more appropriate for you to have antibiotics in hospital, especially if you are very unwell or you would additionally benefit from more intensive treatment. For many patients it is helpful to have a few days in hospital, and then complete the rest of the course at home. All of this will be discussed with patients individually.
For patients who require venous access ports, we are assisted by Dr Robert Allison and others in the intentional radiology team, and Professor Cliff Sherman and others in the vascular surgery team.
If you require ultrasound to assist the placement of a mid-line or PICC line then this will be arranged for after you are admitted.