Clinical Research in Southampton
Southampton Children's Hospital

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Von Hippel-Lindau disease (VHL) - patient information

Description: Information about von Hippel-Lindau (VHL) disease.
Url: /Media/UHS-website-2019/Patientinformation/Genetics/Von-Hippel-Lindau-disease-VHL-1438-PIL.pdf

Pelvic vein embolisation - patient information

Description: This factsheet explains what pelvic vein embolisation is, what the procedure involves and what the possible risks are.
Url: /Media/UHS-website-2019/Patientinformation/Scansandx-rays/Pelvic-vein-embolisation-3610-PIL.pdf

Press release: Southampton doctors trial gene therapy for severe bleeding disorder

Description: Southampton doctors are trialling a pioneering gene therapy that could lead to a cure for patients with a severe bleeding disorder
Url: /AboutTheTrust/Newsandpublications/Latestnews/2019/May/Press-release-Southampton-doctors-trial-gene-therapy-for-severe-bleeding-disorder.aspx

Jennifer Allison, senior research nurse manager

Description: NIHR Wellcome Trust Southampton Clinical Research Facility Auto Generated Title Jennifer ensures the quality and safety of our clinical ac
Url: /ClinicalResearchinSouthampton/Our-people/Research-nurses/Jennifer-Allison,-senior-research-nurse-manager.aspx

A guide to your child's CADD pump - patient information

Description: This factsheet explains what a computerised ambulatory delivery device (CADD) pump is, how it works and how to use it safely
Url: /Media/UHS-website-2019/Patientinformation/Childhealth/A-guide-to-your-childs-CADD-pump-3793-PIL.pdf

Familial adenomatous polyposis (FAP) - patient information

Description: This booklet is for people attending the clinical genetics service with a personal or family history of familial adenomatous polyposis (FAP
Url: /Media/UHS-website-2019/Patientinformation/Genetics/Familial-adenomatous-polyposis-FAP-1429-PIL.pdf

Press release: Southampton expert says home genetic testing kits "shouldn't be used for healthcare decisions"

Description: A leading doctor based at Southampton's university hospitals has warned against the use of home genetic testing kits and called for
Url: /AboutTheTrust/Newsandpublications/Latestnews/2019/October/Press-release-Southampton-expert-says-home-genetic-testing-kits-shouldnt-be-used-for-healthcare-decisions.aspx

Press release: Researchers study if albinism could protect against leading cause of sight loss

Description: Researchers in Southampton are in the early stages of a pioneering study which aims to discover if albinism may protect against
Url: /AboutTheTrust/Newsandpublications/Latestnews/2018/August-2018/Press-release-Researchers-study-if-albinism-could-protect-against-leading-cause-of-sight-loss.aspx

Having a sweat test - patient information

Description: This factsheet explains what a sweat test is, why it is used and what the results mean for you.
Url: /Media/UHS-website-2019/Patientinformation/Respiratory/Having-a-sweat-test-3521-PIL.pdf

Huntington disease (HD) - patient information

Description: This booklet is for people who have a family history of Huntington disease (HD) and would like to understand more about
Url: /Media/UHS-website-2019/Patientinformation/Genetics/Huntington-disease-HD-1437-PIL.pdf

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