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Clinical Research in Southampton
Southampton Children's Hospital
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Food allergy in schools and nurseries - patient information
Description
Most schools and nurseries have systems in place to help children with food allergies. Here are some tips to make sure
Url
/Media/UHS-website-2019/Patientinformation/Childhealth/Food-allergy-in-schools-and-nurseries-2430-PIL.pdf
Ready Steady Go: Parent plan - patient information
Description
Parent/carer’s transition programme Name of parent: Name of patient: Date: Review (1) Review (2) Review (3) Internet access: YES
Url
/Media/UHS-website-2019/Patientinformation/Childhealth/ReadySteadyGo/Readysteadygoparentplan.pdf
Hello to adult services: Parent questionnaire - patient information
Description
Parent/carer’s transition programme Name of parent: Name of patient: Date: Review (1) Review (2) Review (3) StperRoagerdaamydmyeGo Internet access: YES/NO This transition programme is designed to help parents and carers feel confident about their knowledge and skills during the period of transition. Over the coming appointments your healthcare team aims to equip your son/daughter and you with the necessary skills to play an appropriate part in the management of their medical condition. Hteosearlvdliucoelts Knowledge and skills Yes No N/A I understand the meaning of transition I know who’s who in the team and their respective roles I know about resources that offer support for parents/carers of young people with my son/daughters condition I understand what is likely to happen in the future regarding my son/daughter’s condition I am aware how their condition can affect how they feel and function e.g. fatigue, sexual function, fertility etc… I am aware how their condition can impact on their future career plans/work (if applicable) I am confident my son/daughter is knowledgeable about their medical condition and its therapy I feel confident in helping my son/daughter to become responsible for their own medication I feel confident helping my son/daughter to contact the hospital themselves if they need to and to organise their own prescriptions. I know the plan for my son/daughters on-going medical care Parent/carers transition programme Encouraging independence Yes No N/A My son/daughter is independent at home e.g. dressing, bathing, preparing meals, chores etc My son/daughter is independent away from the home e.g. getting to and around college/work, using public transport, shopping etc I feel confident for my son/daughter to be seen on their own for part or all of the clinic visit I understand my son/daughters rights to information, privacy and confidentiality I understand my son/daughters role in shared decision making with the healthcare team e.g. Ask 3 Questions I know how to advise my son/daughter about financial matters e.g. eligibility for benefits and other support Healthy lifestyle I understand the importance of an appropriate healthy diet for young people I encourage my son/daughter to regularly exercise. I am aware of any restrictions my son/daughter may have because of their condition I understand the effects of smoking, drugs and alcohol on my son/daughters condition and general health I know where to access reliable sexual health information for young people and their parents Please list any other things you have any concerns about or would like to discuss Thank you The Ready Steady Go materials were developed by the Transition Steering Group led by Dr Arvind Nagra, paediatric nephrologist and clinical lead for transitional care at Southampton Children’s Hospital, University Hospital Southampton NHS Foundation Trust based on the work of: 1. S Whitehouse and MC Paone. Bridging the gap from youth to adulthood. Contemporary Pediatrics; 1998, December. 13-16. 2. Paone MC, Wigle M, Saewyc E. The ON TRAC model for transitional care of adolescents. Prog Transplant 2006;16:291-302 3. Janet E McDonagh et al, J Child Health Care 2006;10(1):22-42. Users are permitted to use ‘Ready Steady Go’ and ‘Hello to adult services’ materials in their original format purely for non-commercial purposes. No modifications or changes of any kind are allowed without permission of University Hospital Southampton NHS Foundation Trust. The following acknowledgement statement must be included in all publications which make reference to the use of these materials: “Ready Steady Go’ and ‘Hello to adult services’ developed by the Transition Steering Group led by Dr Arvind Nagra, paediatric nephrologist and clinical lead for transitional care at Southampton Children’s Hospital, University Hospital Southampton NHS Foundation Trust based on the work of: 1. S Whitehouse and MC Paone. Bridging the gap from youth to adulthood. Contemporary Pediatrics; 1998, December. 13-16. 2. Paone MC, Wigle M, Saewyc E. The ON TRAC model for transitional care of adolescents. Prog Transplant 2006;16:291-302 3. Janet E McDonagh et al, J Child Health Care 2006;10(1):22-42.” Further information can be found at www.uhs.nhs.uk/readysteadygo v2.0 2015
Url
/Media/UHS-website-2019/Patientinformation/Childhealth/Hello/Hello-to-adult-services-Parent-plan.pdf
PPI in your research
Description
Auto Generated Title What is Patient and Public Involvement (PPI)? Patient and Public Involvement (PPI) is where members of the public
Url
/ClinicalResearchinSouthampton/For-researchers/PPI-in-your-research.aspx
Support for endometriosis - patient information
Description
If you have been diagnosed with endometriosis, you may understandably have some questions or concerns. We have written this factsheet to
Url
/Media/UHS-website-2019/Patientinformation/Womenshealth/Support-for-endometriosis-patient-information.pdf
Praise for dedicated service that supports young patients with learning disabilities
Description
The mum of a young patient who has multiple support needs has praised the work of staff at University Hospital Southampton
Url
/AboutTheTrust/Newsandpublications/Latestnews/2019/June/Praise-for-dedicated-service-that-supports-young-patients-with-learning-disabilities.aspx
Saints squad visits Southampton's hospitals
Description
Players from Southampton Football Club visited University Hospital Southampton NHS Foundation Trust to meet patients and staff across Southampton Children's Hospital
Url
/AboutTheTrust/Newsandpublications/Latestnews/2019/April/Saints-squad-visits-Southamptons-hospitals.aspx
Southampton's enhanced dementia care ward celebrates its first year at grand opening event
Description
For a year it has been pioneering a new approach to supporting patients who are affected by dementia.
Url
/AboutTheTrust/Newsandpublications/Latestnews/2018/May-2018/Southampton's-enhanced-dementia-care-ward-celebrates-its-first-year-at-grand-opening-event.aspx
Young patients set to go for gold at British Transplant Games
Description
A team of eight young transplant patients from across the south are travelling to Scotland to compete in the British Transplant
Url
/AboutTheTrust/Newsandpublications/Latestnews/2017/July-2017/Young-patients-set-to-go-for-gold-at-British-Transplant-Games.aspx
Ready Steady Go - Parent plan (print ready)
Description
Parent/carer's transition programme Name of parent: Name of patient: Date: Review (1) Review (2) Review (3) Internet access: YES/NO
Url
/Media/UHS-website-2019/Patientinformation/Childhealth/ReadySteadyGo/Printready/Ready-Steady-Go-parent-plan-print-ready.pdf
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Last updated: 14 September 2019
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University Hospital Southampton NHS Foundation Trust
Tremona Road
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Hampshire
SO16 6YD
Telephone: 023 8077 7222
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