What are NETs?

NETs are rare cancers that can develop in several organs of the body but are more commonly found in the pancreas, digestion system and lungs. Although many cases are sporadic, certain tumours may have a genetic link. They may also produce hormones leading to a group of symptoms called carcinoid syndrome.

NETs affect approximately seven in every 100,000 people. 4000 new patients are diagnosed every year and about 30,000 people are living with neuroendocrine tumours in the UK.

Common NET symptoms include:

  • flushing of skin 
  • diarrhoea
  • tummy pain
  • tummy swelling
  • intestinal blockage
  • wheezing and breathlessness

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